Happy Halloween from our little pumpkin! The NICU nurses dressed up all the babies as pumpkins and ghosts and Ben even wrote us a halloween card lol. The staff truly goes above and beyond here.
We are about to fly the coop here at the BWH NICU. If all goes accordingly, our best and most special anniversary gift ever will be bringing Ben home on Sunday. Ben has been more alert and hungry and wakeful the past few days- all great signs he is thriving and getting stronger. He is a totally different baby than last weekend. He had his first tubby yesterday and loved it and had his circumcision today.
At the family meeting, our attending Dr recapped the past two weeks and is pleased with the progress Ben has made considering how acutely sick he was those first few days when literally all his organs had taken a minor blow. It was sobering to hear him talk about how sick he was and how Ben beat the odds.
We will be going home with oxygen afterall. The company will set up the house tomorrow. Thankfully with my nursing background it is something I am comfortable managing at home. With the resolving pulmonary hypertension, it's important we don't go backwards. We will have close follow up when we leave including VNA, our pediatrician, and the specialists at Children's who will continue seeing Ben in the months to follow.
It will be a busy winter with fattening Ben up, frequent appointments, and avoiding the germs/flu season. They are adamant about us avoiding any stores, no sick contacts obviously, and anyone who plans on visiting us or spending any quality time with Ben should have the flu vaccine. Fall babies have it the worst this because they have no immunity, no vaccinations yet, and in Ben's case he is even more immunocomprised with his lungs and the oxygen requirement.
We look forward to ending this unexpected and stressful chapter and getting to know Benjamin in the comforts of our own home. Getting to snuggle him whenever we want. No bright lights or beeping monitors, no more Storrow Dr traffic, and most of all, privacy.
We certainly couldn't have done the past 2 weeks without our awesome parents, extended family & friends, dog walkers, the delicious meals to sustain us, prayers/thoughts/cards to keep us positive, our wonderful NICU nurses and the overall love shown for Ben. And lastly, we couldn't have done it without each other. Matt and I have been more gentle, patient, and loving with each other in these past 2 weeks than ever.
We can't wait for more milestones and memories. And of course many cute pictures. Thank you for all your support. It has carried us more than you know.
To thank our NICU team, we couldn't think of a better way to show our gratitude than to give to future NICU babies and families. To learn more about the "BWH Stork Fund" check out: